Adductor Spasmodic Dysphonia
Basically this disorder is a screw-up between the brain and the vocal chords causing a strained or strangled sounding voice often with vocal breaks. Bobby Kennedy Jr has this disorder...You know who he is: Kennedy family, environmental lawyer...hello?
The first time I saw RFK jr speak on television about a year ago I was devastated. I couldnt watch...the poor guy was grasping desperately for words to express himself. The sounds were so labored it pained me to watch. Now my voice is worse than his....but I have no self-pity and other than the fact that my dating life now sucks worse than ever, I dont really care. Jaxon makes fun of me which hurts a little, but what the hell. Of course I am an easy target these days....I sound like Marge Simpson after helium. This disorder hasnt really kept me quiet, although I've already begin wonder what its like to beg for sex in sign language.
On the other hand, Im otherwise healthy and grateful for that. The disorder started slowly. First time I saw the ENT Dr. my voice was near normal. Despite that I was lucky and got diagnosed after I got the "up your nose with a rubber hose" camera treatment. Thats where they put this mini camera up your nose and then down your throat to watch your vocal chords. Talk about youtube. Woo. If you ever have this procedure done, a bit of advice: "don't swallow". Those cameras are expensive and a little hard to digest. Also the Doctors office really doesnt want them back after you recover them. "What do you mean you won't take it back? it still works fine."
Given the fact that this disorder started slowly and was episodic in nature...you know good days and bad days, I took the traditional American approach to treatment. I call it the disinterested girlfriend dealing with horny boyfriend approach to medical treatment: "ignore it and hope it goes away".
I read through a lot of the literature. Lots of articles with big words. Very little of it made sense to me. I mean I sort of understand the medical literature....but it just didnt resonate with my experience.
The medical literature says that this is most likely a neurological disorder originating in the basal ganglia area of the brain. In other words its a movement disorder like Parkinsons. The medical literature also says there is no known cause and no known cures. Botox injections in the throat help. Needles putting toxic poison in my throat?????? What?? Nooooooo, Im not doing that. No way. They say surgery helps sometimes. Now here is where I get really confused. The theory on the surgery is that the vocal nerve is damaged, so the damaged nerve is severed and a healthy nerve is attached. But I still have moments especially as soon as I wake up in the morning where my phonation is near normal. I can talk okay. If the nerve was damaged, how can I have near normal moments? What happens during sleep that causes the nerve to temporarily function correctly upon awakening. Or what happens during the day to cause the nerve to stop functioning? And can those processes be augmented or inhibited as the case might be? Hmmm?
My intuition tells me that the nerve may have some damage, but its the brains reaction to the damage that causes problems. Once the voice begins to have problems, the brain sends a stronger and perhaps longer signal to the vocal chords to compensate for the weak voice. In this case the brain although well-intended is doing the exact opposite of what needs to be done....the brain needs to send a weaker and shorter signal to the vocal chords. The longer and stronger signal cause the vocal chords to slam shut and produce no sound despite the brains intentions.
So all this leads me to step 1. Im going to try and find a competent biofeedback provider with some expertise in this disorder....hopefully some expertise.
Well...let's see what happens.
Here is a vid of me speaking...Don't ask me why the vid is sideways. My phone is smarter than I am and a little bit insubordinate. Hopefully future vids wont have the same problem.


